Well, I end up in obscure places and wonder what's going on. On line at the cocoa beanery, I have my attention drawn to a man who is waving a book at me. "I wrote this book, do you read poetry? I wrote this book and sold 600 copies. Here, read this." I'm not in the middle of a city, I'm in Hershey at a relatively yuppy coffee shop. So I read. Touching. Heartwarming. " Very nice," I explain. I glanced at his bio on the back page and made my way to the line. (A cornell graduate? Is he retired? Is he okay?) Ordered a salad and cinnamon infused tea. Sat down.
It has been a wacky week. Over all it started well, with good physical signs. I could talk and eat the majority of the day. Then the craziness of a labored swallow and the need to drink extra water kicked in about Monday, okay a bit at Saturday brunch. I guess that is the beginning of the week. After a morning and afternoon of a few conversations, the last few evenings were terrible. I limited eating and barely talked during dinner. One word sentences, some of which sounded like I was holding my nose, and an occasional barely intelligible word.
So I have an ENT appointment on Friday and a call in to my neurologist. A few 2nd opinions for the beginning of the new year. I have lab work going to teat for a new-found antibody for Myasthenia Gravis.
Praying it all goes away or that I have a heading and an altitude soon. A consistent one. I can see why a blogging friend entitled her blog "Living with Chronic Illness: The Roller Coaster of MG." I don't even like roller coasters anymore.
As I type I am encouraged by the song overhead:
Joyful all ye nations rise
Join the triumph of the skies.
With angelic host proclaim
Christ is born in Bethlehem.
Seems so far away now but I know it is true.
Christmas will come whether we are ready or not. Aunt Donna in Texas just shared the with me. Good one.